Leaving Your Legacy Via Death Bots? Ethicist Shares Concerns; Medscape, August 21, 2024

Arthur L. Caplan, PhD, Medscape ; Leaving Your Legacy Via Death Bots? Ethicist Shares Concerns

"On the other hand, there are clearly many ethical issues about creating an artificial version of yourself. One obvious issue is how accurate this AI version of you will be if the death bot can create information that sounds like you, but really isn't what you would have said, despite the effort to glean it from recordings and past information about you. Is it all right if people wander from the truth in trying to interact with someone who's died? 

There are other ways to leave memories behind. You certainly can record messages so that you can control the content. Many people video themselves and so on. There are obviously people who would say that they have a diary or have written information they can leave behind. 

Is there a place in terms of accuracy for a kind of artificial version of ourselves to go on forever? Another interesting issue is who controls that. Can you add to it after your death? Can information be shared about you with third parties who don't sign up for the service? Maybe the police take an interest in how you died. You can imagine many scenarios where questions might come up about wanting to access these data that the artificial agent is providing. 

Some people might say that it's just not the way to grieve.Maybe the best way to grieve is to accept death and not try to interact with a constructed version of yourself once you've passed. That isn't really accepting death. It's a form, perhaps, of denial of death, and maybe that isn't going to be good for the mental health of survivors who really have not come to terms with the fact that someone has passed on."

At 17, She Fell in Love With a 47-Year-Old. Now She Questions the Story.; The New York Times, June 10, 2024

 Alexandra Alter, The New York Times; At 17, She Fell in Love With a 47-Year-Old. Now She Questions the Story.

"Ciment decided to perform an autopsy on her memoir. The exercise yielded a new memoir, titled “Consent,” which Pantheon will release on Tuesday. With almost clinical detachment, Ciment investigates the flaws and factual lapses in her earlier work, and in doing so, questions the artifice inherent in memoir as a literary form.

“The whole idea of writing truth in a memoir is so preposterous,” Ciment said. “You have these scattered memories, and you’re trying to carve a story out of them.”"

Israel’s National Library Reopens After Delay Caused by Hamas Attacks; The New York Times, December 26, 2023

Gal Koplewitz, The New York Times; Israel’s National Library Reopens After Delay Caused by Hamas Attacks

"“The library has been able to play a tremendously therapeutic role,” said Raquel Ukeles, head of collections at the library. She said that many visitors have been evacuees from the country’s borders with Gaza and Lebanon, where communities are regularly targeted with rockets and shells, or reservists on leave from the Israeli military.

The library has helped stock mobile libraries that travel the country. Its staff members have also assisted in setting up a “pop-up” school in the previous National Library building for roughly 100 children displaced from their homes by fighting along the Lebanese border.

In the library’s reading room stand scores of chairs, each one holding a book chosen to represent one of the hostages taken on Oct. 7...

The library also has found new ways to serve its core mission as a custodian of collective national memory — painful as this new chapter is.

Library workers are salvaging and digitizing local archives from the ravaged communities overrun on Oct. 7. And staffers like Ms. Cooper are gathering and archiving WhatsApp conversations, in recognition of their documentary value. In Kibbutz Be’eri, the site of some of the worst atrocities on Oct. 7, one the more reliable logs of the day’s events are the messages sent on the community’s group chat."

Roland Pattillo helped keep Henrietta Lacks' story alive. It's key to his legacy; NPR, November 14, 2023

 Walter Ray Watson, NPR; Roland Pattillo helped keep Henrietta Lacks' story alive. It's key to his legacy

"Dr. Roland Pattillo and his wife Pat O'Flynn Pattillo paid for Henrietta Lacks' permanent headstone, a smooth, substantial block of pink granite. It sits in the shape of a hardcover book...

Pattillo, an African American oncologist, stem cell researcher and professor, died in May at age 89. His death went largely unreported. The New York Times ran an obituary last month. The Nation published the news in September...

He protected and elevated Lacks' memory for decades. A Louisiana native, Dr. Pattillo is often described as a quiet, determined man, and a major reason why millions know Henrietta Lacks' story.

He befriended the Lacks family and protected them from reporters and other people. He was aware of the HeLa cell line story, the medical discovery that Henrietta Lacks' cancer cells successfully grew outside her body, but he learned more about the donor when he worked with biologist George Gey, his mentor at Johns Hopkins. Gey was responsible for harvesting her biopsied cancer cells and successfully growing them in culture, the first human cells to do so. They were put to use for medical research in labs around the world...

Henrietta Lacks left behind five young children in 1951.

She was treated at Johns Hopkins, a Baltimore charity hospital that cared for Black patients during the Jim Crow era. Her tumor cells were taken without her knowledge. Her cells became the first successful "immortal" cell line, grown outside her body and used for medical research. They have been instrumental in breakthroughs ever since.

Patients rights and the rules governing them were not like today.

HeLa cells were used to understand how the polio virus infected human beings. A vaccine was developed as a result. More recently, they played a significant role in COVID-19 vaccines.

Pat Pattillo says her husband wanted to share how Lacks' gift benefitted humanity since her death at age 31. But he also hoped to extend empathy for the family she left behind...

Skloot says she and Pattillo first had a mentor and mentee relationship, but it blossomed into a collegial one, especially when they formed the Henrietta Lacks Foundation.

"So, it provides financial support for people who made important contributions to science without their knowledge or consent," she says. "And their descendants, specifically people who were used in historic research studies like the Tuskegee syphilis studies, the Holmes Burke prison studies, and Henrietta Lacks family.""

Voices of the People: The StoryCorps Archive; Library Journal, October 12, 2023

 Elisa Shoenberger , Library Journal; Voices of the People: The StoryCorps Archive 

"Since founder and president David Isay conceived of StoryCorps in 2003, the organization has recorded over 356,000 interviews with over 640,000 people in all 50 states, in over 50 languages, with the archive housed at the American Folklife Center (AFC) at the Library of Congress.

Over the past 20 years, the organization has worked tirelessly to collect and honor the oral histories of its participants while finding new ways of sharing their contributions to the world, including National Public Radio (NPR) broadcasts, animations, podcasts, and five bestselling books. According to StoryCorps’s most recent Annual Report, in 2021, the broadcasts featured on NPR Morning Edition reached 12 million listeners each week.

“We have a scale of recordings, stories, and first person accounts of historical events that is really unmatched,” said Virginia Millington, StoryCorps director of recording and archives. The archive contains stories recalling pivotal historical events that include World War II, the rise of Hip Hop, and 9/11, as well as personal stories of happiness and heartbreak.

In order to make sure that the diversity of experiences are represented, StoryCorps has developed several initiatives over the years to target particular parts of US society. For instance, there is the Military Voices Initiative, to collect interviews from veterans, military families, service members; another initiative works to honor the stories of LGBTQ+ in initiative StoryCorps OutLoud; while StoryCorps Griot collects the experiences of African Americans.

Other programs focus on Latinos, people working in the end of life care facilities (hospitals, palliative care), juvenile and adult justice system, refugees, immigrants and Muslim communities to name a few."

Our History Is Our Protection; American Libraries, November 1, 2023

 Tracie D. Hall, American Libraries; Our History Is Our Protection

"Before his own death, another civil rights crusader, US Rep. John Lewis, presciently asserted that in his estimation, access to the internet (and information more broadly) would be the civil rights issue of the 21st century.

Lewis’s words demonstrate uncanny foresight. In this moment where disinformation and information disparity have become normalized, many libraries are forced to fight defunding when they should rightfully be advocating for increased funding to provide the growing educational and social services they are being asked to take on.

We are indeed in the midst of a civil rights movement. Libraries are called to face this moment just as we have in times before, with an indefatigable commitment to information access and the unequivocal belief that right of access applies to everyone.

That legacy, that history, is our protection." 

Russia shuts down human rights group that preserved the legacy of Nobel laureate Andrei Sakharov; AP, August 18, 2023

 JIM HEINTZ, AP; Russia shuts down human rights group that preserved the legacy of Nobel laureate Andrei Sakharov

"Separate Russian courts on Friday ordered the liquidation of a human rights organization that preserved the legacy of Nobel Peace Prize laureate Andrei Sakharov and the arrest of a prominent election monitor, in the latest moves in a widespread crackdown on dissent. 

Sakharov, who died in 1989, was a key figure in developing the Soviet Union’s hydrogen bomb program but later become renowned for his activism in promoting human rights and freedom of conscience. He was awarded the Nobel prize in 1975 but was not allowed to travel to Norway to receive it. In 1980 he was sent into internal exile, which lasted six years.

The organization founded in his honor operated the Sakharov Center museum and archives in Moscow. Authorities declared it a “foreign agent” in 2014 and this year ordered the eviction of the center from its premises."

21st-century editors should keep their hands off of 20th-century books; The Washington Post, June 12, 2023

 Editorial Board, The Washington Post; 21st-century editors should keep their hands off of 20th-century books

"A number of beloved novels, for both children and adults, are being “retouched” — updated to remove overtly racist, sexist or otherwise offensive language. Publishers and literary estates — including those of best-selling mystery writer Agatha Christie, children’s author Roald Dahl and James Bond creator Ian Fleming — argue these changes will ensure, in the words of the Dahl estate, that “wonderful stories and characters continue to be enjoyed by all children today.”

But it’s a threat to free expression, to historical honesty and, indeed, to readers themselves for contemporary editors to comb through works of fiction written at different moments and rewrite them for today’s mind-set, particularly with little explanation of process or limiting principles. The trend raises uncomfortable questions about authorship and authenticity, and it ignores the reality that texts are more than consumer goods or sources of entertainment in the present. They are also cultural artifacts that attest to the moment in which they were written — the good and the bad...

Literature is often meant to be provocative. Stripping it of any potential to offend dilutes its strength, especially in a moment when there is a concerted effort in this country to limit what can be read and taught. Publishers need not reprint books with no acknowledgment of potentially offensive contents. They can treat the publication of such texts as opportunities to explain why they read the way they do, in introductions and in footnotes. And, if publishers see little option but to change wording, they should at least explain to readers what they are changing and why."

Ominous rhetoric gains grounds in Russia as its forces founder in Ukraine; The Washington Post, April 13, 2022

Robyn Dixon, The Washington Post; Ominous rhetoric gains grounds in Russia as its forces founder in Ukraine

"In late March, the head of Russia’s Investigative Committee launched a probe into whether Ukrainian students’ textbooks “target children with hatred of Russia and the Russian language” and “distort history.” There already is evidence, Finkel noted, of Russian soldiers in Ukraine going through libraries and schools and destroying books in Ukrainian or those about the country’s history and struggle for independence.

“I think there is a clear indication that [the Russians] are targeting quite deliberately everything and everyone that is associated with Ukrainians as a national identity,” he said."

Why Vladimir Putin has already lost this war; The Guardian, February 28, 2022

Yuval Noah Harari, The Guardian; Why Vladimir Putin has already lost this war

"Nations are ultimately built on stories. Each passing day adds more stories that Ukrainians will tell not only in the dark days ahead, but in the decades and generations to come. The president who refused to flee the capital, telling the US that he needs ammunition, not a ride; the soldiers from Snake Island who told a Russian warship to “go fuck yourself”; the civilians who tried to stop Russian tanks by sitting in their path. This is the stuff nations are built from. In the long run, these stories count for more than tanks."

How the new banned books panic fits into America’s history of school censorship; Vox, February 17, 2022

Constance Grady, Vox ; How the new banned books panic fits into America’s history of school censorship

"“Whoever gets to control what kids are reading gets to control the definition of, quote-unquote, the real America,” he says. “That resonates with a lot of people.”"

‘Everyone was freaking out’: Navalny novichok film made in secret premieres at Sundance; The Guardian, January 26, 2022

Shaun Walker, The Guardian; ‘Everyone was freaking out’: Navalny novichok film made in secret premieres at Sundance 

Director Daniel Roher tells of panic after team  recorded Alexei Navalny pranking one of his Russian poisoners into confessing

"At the end of the film, Navalny answers a request from the director to record a message for the eventuality that he were killed on his return. “I’ve got something very obvious to tell you: don’t give up, you’re not allowed. If they decided to kill me, it means we are incredibly strong, and we need to use this power,” he said."

‘Inconceivable’: why has Australia’s history been left to rot?; The Guardian, May 22, 2021

Elias Visontay The Guardian; ‘Inconceivable’: why has Australia’s history been left to rot?

Historians are aghast that the National Archives have had to resort to crowdfunding to protect irreplaceable historical records

[Kip Currier: This report on the deplorable state of archival management and preservation by Australia's National Archives is a call-to-arms case study exemplar of abject information preservation dereliction of duty and responsibility. Kudos to those who are mobilizing to endeavor to avert this archival dis-management catastrophe.]

"The Guardian requested an interview with director-general David Fricker or another member of the National Archives. A spokeswoman said no one was available."

Our greatest libraries are melting away; The Washington Post, April 7, 2021

David Farrier , The Washington Post; Our greatest libraries are melting away

 

"Spending time in the library of ice reminds us that our history is bound up with that of the planet. As that library comes under ever increasing risk, we should remember the fate of another great library. Legend tells that the Library of Alexandria burned to the ground, but the truth is less spectacular. As the Roman Empire fell into decline, people simply neglected to protect and preserve the fragile papyrus manuscripts that were stored in the Library of Alexandria. Gone with it were the greatest treasures of the ancient world: hundreds of years of civilizations’ stories, memories, knowledge and wisdom.

The greatest library in history was lost to neglect. Unless we act now, the library of ice will meet the same fate."

Vandals destroy Little Free Library inside children’s memorial garden in Hermitage; WKBN, July 10, 2020

Dave Sess, WKBN; Vandals destroy Little Free Library inside children’s memorial garden in Hermitage 

The Little Free Library was started to remember Danielle Greenburg, a children's librarian who was passionate about literacy

"The Butterfly Garden is dedicated to children who passed away. Greenburg was a children’s librarian, passionate about literacy. Team Danielle was started in her memory.

“As of this week, have donated over $300,000 to Sarcoma Research,” McIntire said.

And that work will continue.

The library was open to all. Take a book, read a book, put it back for the next person. The Little Free Library will definitely return.

“That’s something that will be a priority and putting back into place and refill it with some books,” said Ryan Voisey, with Buhl Park.

“So we’ll fix it and hope they’ve had enough of us and go somewhere else,” McIntire said.

There have been many promises of donations already to rebuild and restock the Little Free Library at Buhl Park. The children’s programs that are held there will continue as well."

On the ethics of documenting a pandemic; British Journal of Photography, April 9, 2020

 Hannah Abel-Hirsch, British Journal of Photography; On the ethics of documenting a pandemic

"How do you navigate the ethics of documenting a crisis where the best course of action is to stay home — what is the importance of photographing it versus the risk it may bring to subjects?

One of the fundamental aspects of democracy is press freedom. I am a journalist and filmmaker and I have a duty to consider how to ethically document the crisis. A month ago, in Italy, the only imagery circulating was that which depicted empty streets and people wearing masks. I felt part of the story was missing, and I took the time to examine how to cover it safely with the necessary protective gear, and to understand what would be the right time and location. The concern is always how you do it — the process — and how you tell the story."

It wasn’t just the National Archives. The Library of Congress also balked at a Women’s March photo.; The Washington Post, January 31, 2020

Joe Heim , The Washington Post; It wasn’t just the National Archives. The Library of Congress also balked at a Women’s March photo.

 

"The Library of Congress abandoned plans last year to showcase a mural-size photograph of demonstrators at the 2017 Women’s March in Washington because of concerns it would be perceived as critical of President Trump, according to emails obtained by The Washington Post...

 

Slayton said the decision to remove the photograph was made by leadership of the library’s Center for Exhibits and Interpretation. “No outside entities reviewed this exhibition’s content before it opened or opined on its content,” the spokeswoman wrote.

Librarian of Congress Carla Hayden was informed of the decision soon after and supported it, Slayton said. Hayden, who is in the fourth year of her 10-year term, was appointed by President Barack Obama in 2016 and confirmed by the Senate."

 

Keep your tidy, spark-joy hands off my book piles, Marie Kondo; The Washington Post, January 10, 2019

Ron Charles, The Washington Post; Keep your tidy, spark-joy hands off my book piles, Marie Kondo

"“Books are the reflection of your thoughts and values,” Kondo says, and she’s right, but then she’s so wrong when she goes on to tell her television audience: “By tidying books, it will show you what kind of information is important to you at this moment.”

That’s the problem with Kondo’s method. It presumes a kind of self-consciousness that no real lover of literature actually feels. We don’t keep books because we know “what kind of information is important to us at this moment.” We keep them because we don’t know.

So take your tidy, magic hands off my piles, if you please. That great jumble of fond memories, intellectual challenges and future delights doesn’t just spark, it warms the whole house."

Israeli student admits stealing items from Auschwitz for art project; Guardian, July 19, 2017

Peter Beaumont, Guardian; Israeli student admits stealing items from Auschwitz for art project

"“I felt it was something I had to do. Millions of people were murdered based on the moral laws of a certain country, under a certain regime. And if these are the laws, I can go there and act according to my own laws. The statement I’m making here is that laws are determined by humans, and that morality is something that changes from time to time and from culture to culture.

“These are the things I want to deal with. I am a third generation to the Holocaust, but I’m not saying I’m allowed to do it because my grandfather was in Auschwitz. I’m simply asking the questions. I’m concerned that after all the survivors are gone, the Holocaust will turn into a myth, something that cannot be perceived.”

Her academic supervisor, Israel prize-winning artist Michal Na’aman, appeared to go some way towards justifying Bides’s action in the same publication."

How to make sure the Kremlin remembers Boris Nemtsov; Washington Post, March 15, 2017

Vladimir V. Kara-Murza, Washington Post; How to make sure the Kremlin remembers Boris Nemtsov

"Nemtsov did not become president. But for many people in my country, he became the symbol of a different Russia — more democratic, more hopeful, more European, one at peace with itself and with its neighbors.

The renaming of diplomatic addresses has a precedent that was also set by Congress and that was also connected with Russia. In 1984, an amendment to the D.C. appropriations bill offered by Sen. Alfonse M. D’Amato (R-N.Y.) changed the address of the then-Soviet Embassy on 16th Street NW to 1 Andrei Sakharov Plaza, in honor of the Russian dissident and Nobel Peace Prize laureate who was being kept in internal exile in Gorky (the Soviet-era name for Nizhny Novgorod). Few could have thought then that less than a decade later, Russian diplomats would display a bust of Sakharov in the embassy itself.

There will come a day when Russia takes pride in having Boris Nemtsov’s name on its embassy letterhead. It will also be grateful to those who, in difficult times, did not allow it to forget."