For Vulnerable Populations, the Thorny Ethics of Genetic Data Collection; Undark, September 30, 2019

Adrian Pecotic, Undark; For Vulnerable Populations, the Thorny Ethics of Genetic Data Collection

"Research to capture these snapshots, called genome-wide association studies, can only draw conclusions about the data that’s been collected. Without studies that look at each underrepresented population, genetic tests and therapies can’t be tailored to everyone. Still, projects intended as correctives, like All of Us and the International HapMap Project, face an ethical conundrum: Collecting that data could exploit the very people the programs intend to help."

‘It was getting ugly’: Native American drummer speaks on the MAGA-hat wearing teens who surrounded him; The Washington Post, January 19, 2019

Antonio Olivo and Cleve R. Wootson Jr., The Washington Post; ‘It was getting ugly’: Native American drummer speaks on the MAGA-hat wearing teens who surrounded him

"The images in a series of videos that went viral on social media Saturday showed a tense scene near the Lincoln Memorial.

In them, a Native American man steadily beats his drum at the tail end of Friday’s Indigenous Peoples March while singing a song of unity for indigenous people to “be strong” in the face of the ravages of colonialism that now include police brutality, poor access to health care and the ill effects of climate change on reservations.

Surrounding him are a throng of young, mostly white teenage boys, several wearing Make America Great Again caps, with one standing about a foot from the drummer’s face wearing a relentless smirk."

WIPO Traditional Knowledge Committee Begins Work On Core Issues; Indigenous Peoples May Be Left Out; Intellectual Property Watch, August 27, 2018

Catherine Saez, Intellectual Property Watch;

WIPO Traditional Knowledge Committee Begins Work On Core Issues; Indigenous Peoples May Be Left Out

"The World Intellectual Property Organization’s committee seeking to find solutions against misappropriation of traditional knowledge opened this morning. While delegates are expected to negotiate wording of a potential treaty, the fund allowing indigenous peoples to participate in the discussions is empty with no foreseeable new donors, described by the chair as a historical situation. The committee is also trying to agree on recommendations for the upcoming WIPO General Assembly next month. On core issues, such as what the protection should cover, who would benefit from it, and under which conditions, delegates still have to find common positions."