, Undark; For Vulnerable Populations, the Thorny Ethics of Genetic Data Collection
"Research to capture these snapshots, called genome-wide association
studies, can only draw conclusions about the data that’s been collected.
Without studies that look at each underrepresented population, genetic
tests and therapies can’t be tailored to everyone. Still, projects
intended as correctives, like All of Us and the International HapMap Project, face an ethical conundrum: Collecting that data could exploit the very people the programs intend to help."
Issues and developments related to ethics, information, and technologies, examined in the ethics and intellectual property graduate courses I teach at the University of Pittsburgh School of Computing and Information. My Bloomsbury book "Ethics, Information, and Technology" will be published in Summer 2025. Kip Currier, PhD, JD
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