, Undark; For Vulnerable Populations, the Thorny Ethics of Genetic Data Collection
"Research to capture these snapshots, called genome-wide association
studies, can only draw conclusions about the data that’s been collected.
Without studies that look at each underrepresented population, genetic
tests and therapies can’t be tailored to everyone. Still, projects
intended as correctives, like All of Us and the International HapMap Project, face an ethical conundrum: Collecting that data could exploit the very people the programs intend to help."
Ethically-tangled aspects of 21st century societies and cultures. In the vein of Charles Darwin’s 1859 “entangled bank” metaphor—a complex and evolving digital ecosystem of difference and dependence, where humans, technologies, ethics, law, policy, data, and information converge and diverge. Kip Currier, PhD, JD
Showing posts with label genome-wide association studies. Show all posts
Showing posts with label genome-wide association studies. Show all posts
Monday, September 30, 2019
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