Your DNA is a valuable asset, so why give it to ancestry websites for free?; The Guardian, February 16, 2020

Laura Spinney, The Guardian; Your DNA is a valuable asset, so why give it to ancestry websites for free?

"The announcement by 23andMe, a company that sells home DNA testing kits, that it has sold the rights to a promising new anti-inflammatory drug to a Spanish pharmaceutical company is cause for celebration. The collected health data of 23andMe’s millions of customers have potentially produced a medical advance – the first of its kind. But a few weeks later the same company announced that it was laying off workers amid a shrinking market that its CEO put down to the public’s concerns about privacy.

These two developments are linked, because the most intimate data we can provide about ourselves – our genetic make-up – is already being harvested for ends we aren’t aware of and can’t always control. Some of them, such as better medicines, are desirable, but some of them should worry us...

These are the privacy concerns that may be behind layoffs, not only at 23andMe, but also at other DTC companies, and that we need to resolve urgently to avoid the pitfalls of genetic testingwhile [sic] realising its undoubted promise. In the meantime, we should all start reading the small print."

Consumer DNA Testing May Be the Biggest Health Scam of the Decade; Gizmodo, November 20, 2019

Ed Cara, Gizmodo; Consumer DNA Testing May Be the Biggest Health Scam of the Decade

"This test, as well as many of those offered by the hundreds of big and small DNA testing companies on the market, illustrates the uncertainty of personalized consumer genetics.

The bet that companies like 23andMe are making is that they can untangle this mess and translate their results back to people in a way that won’t cross the line into deceptive marketing while still convincing their customers they truly matter. Other companies have teamed up with outside labs and doctors to look over customers’ genes and have hired genetic counselors to go over their results, which might place them on safer legal and medical ground. But it still raises the question of whether people will benefit from the information they get. And because our knowledge of the relationship between genes and health is constantly changing, it’s very much possible the DNA test you take in 2020 will tell you a totally different story by 2030."

Would You Want To Know The Secrets Hidden In Your Baby's Genes?; NPR, 10/31/16

[Podcast] Mary Harris, NPR; Would You Want To Know The Secrets Hidden In Your Baby's Genes? :

"Lauren and Ian Patrick, the parents of baby Finn, are a good case study.

Initially, they were convinced they wanted the screening. But after an hour talking to a genetic counselor about all the ways this sequencing could go wrong, they decided against it.

They learned that any genetic sequencing would go in their son's medical record, and it wouldn't be able to be removed. And while federal law prohibits genetic discrimination by health care providers and in the workplace, life insurers can still use genetic information to pick and choose whom they'll sell policies to. By the time the meeting was over, the Patricks' excitement had been replaced with concern."