"Lauren and Ian Patrick, the parents of baby Finn, are a good case study. Initially, they were convinced they wanted the screening. But after an hour talking to a genetic counselor about all the ways this sequencing could go wrong, they decided against it. They learned that any genetic sequencing would go in their son's medical record, and it wouldn't be able to be removed. And while federal law prohibits genetic discrimination by health care providers and in the workplace, life insurers can still use genetic information to pick and choose whom they'll sell policies to. By the time the meeting was over, the Patricks' excitement had been replaced with concern."
Issues and developments related to ethics, information, and technologies, examined in the ethics and intellectual property graduate courses I teach at the University of Pittsburgh School of Computing and Information. My Bloomsbury book "Ethics, Information, and Technology" will be published in Summer 2025. Kip Currier, PhD, JD
Showing posts with label gene scans for newborns. Show all posts
Showing posts with label gene scans for newborns. Show all posts
Tuesday, November 1, 2016
Would You Want To Know The Secrets Hidden In Your Baby's Genes?; NPR, 10/31/16
[Podcast] Mary Harris, NPR; Would You Want To Know The Secrets Hidden In Your Baby's Genes? :
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