ScienceAdviser: Shifting from harm to resilience Today in Science and science: ScienceAdviser honors Indigenous Peoples’ Day; Science, October 14, 2024

ScienceAdviser: Shifting from harm to resilience

"Today, in honor of Indigenous Peoples’ Day, Science Staff Writer Rodrigo Pérez Ortega speaks with Diné genetic epidemiologist Krystal Tsosie about the holiday and the importance of Indigenous data sovereignty. The rest of this edition of ScienceAdviser is centered on research that is relevant to and/or being conducted by Indigenous scientists and communities...

Your work has focused on Indigenous data sovereignty. Can you tell me more about the current efforts pushing for Native tribes to have control over their own data?

One recent effort is the #DataBack movement, which is about reclaiming control over Indigenous data, specifically genomic and biological data that have been taken and stored without our consent. My colleague, Keolu Fox, and I have been advocating for Indigenous data sovereignty. We’ve even made stickers to raise awareness, and I love seeing them on water bottles and in public spaces. It’s a small, symbolic way to promote the idea that Indigenous data should be returned to the communities it belongs to."

23andMe is on the brink. What happens to all its DNA data?; NPR, October 3, 2024

 Bobby Allyn, NPR; 23andMe is on the brink. What happens to all its DNA data?

"As 23andMe struggles for survival, customers like Wiles have one pressing question: What is the company’s plan for all the data it has collected since it was founded in 2006?

“I absolutely think this needs to be clarified,” Wiles said. “The company has undergone so many changes and so much turmoil that they need to figure out what they’re doing as a company. But when it comes to my genetic data, I really want to know what they plan on doing.”

White House tech office to co-host open data roundtables; FedScoop, 3/22/16

Wyatt Kash, FedScoop; White House tech office to co-host open data roundtables:

"The White House Office of Science Technology Policy has unveiled plans to co-host four open data roundtables, with the first to get underway Thursday, as part of a continuing push to advance the use of federal data.

The sessions are expected to bring together a limited number of technical, policy and legal experts from federal agencies, academia and the private sector — and collect input from the public — as part of an effort to accelerate the use of government open data sets, according to an OSTP briefing.

The roundtables, which will be co-hosted and conducted by the Center for Open Data Enterprise, which conducted similar roundtables last year, will focus on four challenges confronting the open data community...

Libraries’ Love Your Data Week raises awareness among research universities; Penn State News, 2/5/16

Penn State News; Libraries’ Love Your Data Week raises awareness among research universities:

"During the week of Feb. 8, university research libraries across the United States, including Penn State’s University Libraries — @psulibs on Twitter, Facebook and Instagram — are participating in a grassroots social media campaign to spread awareness about the importance of documenting, sharing, preserving and making available research data.

Love Your Data Week — hashtag #lyd16 — is about recognizing the ways in which individuals can start caring for data now, adopting consistent practices, modeling and implementing them for generations to come. Managing data in a conscionable way, with attention as well to affordances for reuse, is both a responsibility to the scholarly record and an important public good.

University students, in particular, are learning and researching in an era of increasing compliance with federal funding agencies’ requirements for public access to research results, including data. The themes of Love Your Data Week prompt faculty and staff to ask: How do we teach students to be responsible stewards of their scholarly outputs? How do we instill in them an awareness of potential future users of their work — a perspective that affects how data gets shared or not, is made accessible or not?"

Sara Fine Institute presents: Christine Borgman, "Big Data, Open Data, and Scholarship": Mon Feb 29th 3.00pm - 5.00pm, University of Pittsburgh

Sara Fine Institute presents: Christine Borgman, "Big Data, Open Data, and Scholarship" :

"Monday Feb 29th 3.00pm - 5.00pm

University Club, Ballroom A, 123 University Pl, Pittsburgh, PA 15260

"Big Data, Open Data, and Scholarship"

by Christine L. Borgman

Distinguished Professor & Presidential Chair in Information Studies

University of California, Los Angeles

Scholars gathered data long before the emergence of books, journals, libraries, publishers, or the Internet. Until recently, data were considered part of the process of scholarship, essential but largely invisible. In the “big data” era, the products of these research processes have become valuable objects in themselves to be captured, shared, reused, and sustained for the long term. Data also has become contentious intellectual property to be protected, whether for proprietary, confidentiality, competition, or other reasons. Public policy leans toward open access to research data, but rarely with the public investment necessary to sustain access. Enthusiasm for big data is obscuring the complexity and diversity of data in scholarship and the challenges for stewardship. Data practices are local, varying from field to field, individual to individual, and country to country. This talk will explore the stakes and stakeholders in research data and implications for policy and practice.

Join us Feb. 29, 2016 at 3pm at the University of Pittsburgh’s University Club (Ballroom A). This event is free to attend and no RSVP is required. A reception will follow."