Their DNA Hides a Warning, but They Don’t Want to Know What It Says; The New York Times, January 21, 2022

 Gina Kolata, The New York Times ; Their DNA Hides a Warning, but They Don’t Want to Know What It Says

"Benjamin Berkman, a bioethicist at the National Institutes of Health, said that, in his view, the benefits of telling participants about genetic findings that can be treated or prevented greatly outweighed the risk that the participants might be frightened or fail to follow up.

“These are important pieces of information that can be lifesaving,” he said.

But not all biobanks give subjects the chance to receive health warnings.

At Vanderbilt, Dr. Clayton said, she volunteered genetic information to a biobank whose participants have been de-identified — all names and other personal information are stripped from the data. It also has other protections to prevent individuals in the bank from being found. While she happily contributed to the research, Dr. Clayton said, she is glad her data can’t be traced and that no one will call her if they find something that may be worrying.

“I don’t want to know,” she said."

That Discomfort You’re Feeling Is Grief; Harvard Business Review (HBR), March 23, 2020

Scott Berinato, Harvard Business Review (HBR); That Discomfort You’re Feeling Is Grief

"One colleague mentioned that what she felt was grief. Heads nodded in all the panes.

If we can name it, perhaps we can manage it. We turned to David Kessler for ideas on how to do that. Kessler is the world’s foremost expert on grief. He co-wrote with Elisabeth Kübler-Ross On Grief and Grieving: Finding the Meaning of Grief through the Five Stages of Loss. His new book adds another stage to the process, Finding Meaning: The Sixth Stage of Grief. Kessler also has worked for a decade in a three-hospital system in Los Angeles. He served on their biohazard’s team. His volunteer work includes being an LAPD Specialist Reserve for traumatic events as well as having served on the Red Cross’s disaster services team. He is the founder of www.grief.com which has over 5 million visits yearly from 167 countries...

What can individuals do to manage all this grief?

Understanding the stages of grief is a start. But whenever I talk about the stages of grief, I have to remind people that the stages aren’t linear and may not happen in this order. It’s not a map but it provides some scaffolding for this unknown world. There’s denial, which we say a lot of early on: This virus won’t affect us. There’s anger: You’re making me stay home and taking away my activities. There’s bargaining: Okay, if I social distance for two weeks everything will be better, right? There’s sadness: I don’t know when this will end. And finally there’s acceptance. This is happening; I have to figure out how to proceed.

Acceptance, as you might imagine, is where the power lies. We find control in acceptance. I can wash my hands. I can keep a safe distance. I can learn how to work virtually...

One particularly troubling aspect of this pandemic is the open-endedness of it. 

This is a temporary state. It helps to say it. I worked for 10 years in the hospital system. I’ve been trained for situations like this. I’ve also studied the 1918 flu pandemic. The precautions we’re taking are the right ones. History tells us that. This is survivable. We will survive. This is a time to overprotect but not overreact.

And, I believe we will find meaning in it. I’ve been honored that Elisabeth Kübler-Ross’s family has given me permission to add a sixth stage to grief: Meaning. I had talked to Elisabeth quite a bit about what came after acceptance. I did not want to stop at acceptance when I experienced some personal grief. I wanted meaning in those darkest hours. And I do believe we find light in those times. Even now people are realizing they can connect through technology. They are not as remote as they thought. They are realizing they can use their phones for long conversations. They’re appreciating walks. I believe we will continue to find meaning now and when this is over." 

The Emily Posts of the Digital Age; New York Times, 3/29/13

Alex Williams, New York Times; The Emily Posts of the Digital Age: "Are manners dead? Cellphones, Twitter and Facebook may be killing off the old civilities and good graces, but a new generation of etiquette gurus, good-manner bloggers and self-appointed YouTube arbiters is rising to make old-fashioned protocols relevant to a new generation... But perhaps the fastest-growing area of social advice — one that has spawned not just videos but also Web sites, blogs and books — is the Internet itself, and the proper displays of what’s been termed “netiquette.” There are YouTube videos on using emoticons in business e-mails, being discreet when posting on someone’s Facebook wall, limiting baby photos on Instagram, retweeting too many Twitter messages and juggling multiple online chats. “We’re living in an age of anxiety that’s a reflection of the near-constant change and confusion in technology and social mores,” said Steven Petrow, an author of five etiquette books including “Mind Your Digital Manners: Advice for an Age Without Rules,” to be published in 2014. (Mr. Petrow is a regular contributor to The New York Times, writing an advice column on gay-straight issues for the Booming blog.)"