"But for many social scientists, the most impressive thing was that the authors had been able to examine US federal tax returns: a closely guarded data set that was then available to researchers only with tight restrictions. This has made the study an emblem for both the challenges and the enormous potential power of 'administrative data' — information collected during routine provision of services, including tax returns, records of welfare benefits, data on visits to doctors and hospitals, and criminal records. Unlike Internet searches, social-media posts and the rest of the digital trails that people establish in their daily lives, administrative data cover entire populations with minimal self-selection effects: in the US census, for example, everyone sampled is required by law to respond and tell the truth. This puts administrative data sets at the frontier of social science, says John Friedman, an economist at Brown University in Providence, Rhode Island, and one of the lead authors of the education study1. “They allow researchers to not just get at old questions in a new way,” he says, “but to come at problems that were completely impossible before.”... But there is also concern that the rush to use these data could pose new threats to citizens' privacy. “The types of protections that we're used to thinking about have been based on the twin pillars of anonymity and informed consent, and neither of those hold in this new world,” says Julia Lane, an economist at New York University. In 2013, for instance, researchers showed that they could uncover the identities of supposedly anonymous participants in a genetic study simply by cross-referencing their data with publicly available genealogical information."
Issues and developments related to ethics, information, and technologies, examined in the ethics and intellectual property graduate courses I teach at the University of Pittsburgh School of Computing and Information. My Bloomsbury book "Ethics, Information, and Technology" will be published in Summer 2025. Kip Currier, PhD, JD
Showing posts with label protecting data sets. Show all posts
Showing posts with label protecting data sets. Show all posts
Saturday, October 17, 2015
Researchers wrestle with a privacy problem; Nature, 9/22/15
Erika Check Hayden, Nature; Researchers wrestle with a privacy problem:
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