Showing posts with label personally identifiable information. Show all posts
Showing posts with label personally identifiable information. Show all posts

Tuesday, January 10, 2017

Your private medical data is for sale – and it's driving a business worth billions; Guardian, 1/10/17

Sam Thielman, Guardian; 

Your private medical data is for sale – and it's driving a business worth billions:

"Your medical data is for sale – all of it. Adam Tanner, a fellow at Harvard’s institute for quantitative social science and author of a new book on the topic, Our Bodies, Our Data, said that patients generally don’t know that their most personal information – what diseases they test positive for, what surgeries they have had – is the stuff of multibillion-dollar business.

But although the data is nominally stripped of personally identifying information, data miners and brokers are working tirelessly to aggregate detailed dossiers on individual patients; the patients are merely called “24601” instead of “Jean Valjean”."

Thursday, August 11, 2016

Straight Writer Blasted For ‘Outing’ Olympians In Daily Beast Piece; Huffington Post, 8/11/16

Curtis M. Wong, Huffington Post; Straight Writer Blasted For ‘Outing’ Olympians In Daily Beast Piece:
"The backlash from other media outlets, predictably, was swift. Blasting Hines’s article as a “dangerous disaster” and “a wildly unethical train wreck,” Slate’s Mark Joseph Stern wrote, “Hines may view his Grindr-baiting as all fun and games. For the victims of his unprincipled journalism, however, his nasty little piece has the power to ruin lives.”
Many were specifically concerned that Hines’s piece was outing athletes, especially those from countries like Russia and Jamaica where it’s dangerous for people to be openly LGBT. Added Mic’s Mathew Rodriguez: “Sure, queer sexuality can be a fascinating topic for journalism — when it’s done respectfully and, hopefully, by someone with ties to the community. But just booting up an app and seeing that people like sex isn’t journalism, and the tone stigmatizes gay sexuality even further.”...
After the story was published, a note by Daily Beast Editor-in-Chief John Avlon appeared at the bottom of the piece, noting that “all descriptions of the men and women’s profiles that we previously described” had been removed."

Sunday, July 31, 2016

How Your Health Data Lead A Not-So-Secret Life Online; NPR, 7/30/16

Angus Chen, NPR; How Your Health Data Lead A Not-So-Secret Life Online:
"Medical information can be gleaned from all this and more, says Nathan Cortez, a professor of law at the Southern Methodist University Dedman School of Law.
A recent report from the Department of Health and Human Services showed that the vast majority of mobile health apps on the marketplace aren't covered by the Health Information Portability and Accountability Act. "HIPAA is pretty narrow as far as these things go. It applies only to traditional entities [like hospitals, doctors and health insurance providers], and it's not surprising. HIPAA was written by Congress in 1996 before we had health apps," Cortez says.
Apps or devices used in conjunction with a doctor's office or a hospital can't share or sell your information. But there's no definitive federal law governing what happens to the data that an app developer, tech company or private individual collects. Cortez and I spoke about what that means and what people can do with individuals' data."