Showing posts with label mission. Show all posts
Showing posts with label mission. Show all posts

Tuesday, July 4, 2017

Louisiana considers radical step to counter high drug prices: Federal intervention; Washington Post, July 3, 2017

Carolyn Y. Johnson, Washington Post; Louisiana considers radical step to counter high drug prices: Federal intervention

"Gilead, a company that has projected between $7.5 billion and $9 billion in sales for 2017 for its hepatitis C drugs, says federal intervention would threaten future progress.

In a statement, the company said the proposal “puts in jeopardy further medical innovation by undermining the patent system and de-incentivizing research and development.” Gilead said that the state’s predictions of the budget impact are unrealistic, based on the idea that the entire infected population could be screened, treated and connected to treatment in a year. Gilead offers states that do not restrict access to treatments deep discounts — less than $30,000 for a 12-week treatment...

Gee said that she is not wedded to one approach and that she simply thinks the equity and access problems that are an outgrowth of high drug prices need to be tackled. After receiving the expert panel’s recommendation, Gee put out the proposal for public comment and received 102, a majority of which were in favor of taking some action. She expects to make a decision soon about a strategy to try to eliminate hepatitis C in Louisiana."

Tuesday, June 27, 2017

Key Government Privacy Watchdog Muzzled During Surveillance Debate; Slate, June 26, 2017

Andrea Peterson, Slate; Key Government Privacy Watchdog Muzzled During Surveillance Debate

"The Privacy and Civil Liberties Oversight Board, or PCLOB, is a little-known agency that’s had an outsize influence in recent years on the debate over government spying. The board’s job is to make sure that when the executive branch takes action to defend the country, Americans’ privacy rights and civil liberties aren’t forgotten. To carry out that mission, the board has almost unparalleled access to classified information across the intelligence agencies. PCLOB uses that access to advise agencies on how to roll out surveillance programs while minimizing privacy and civil liberties violations, review programs already in operation, and raise the alarm when it uncovers problems.

But right now, despite the high stakes, the board is being held hostage by a personnel shortage...

The board is supposed to be led by a bipartisan group of five people: a full-time chair and four part-time members who are nominated by the president and confirmed by the Senate. Due to a string of departures over the last year, it’s down to just one part-time member."

Saturday, February 13, 2016

Defaced sign won't deter medical practice from its mission; Pittsburgh Post-Gazette, 2/13/16

Dan Majors, Pittsburgh Post-Gazette; Defaced sign won't deter medical practice from its mission:
"Dr. Lane, who specializes in care to the LGBT community, said the homophobic and profane graffiti saddened her. But she has a message that is more important and will connect with more people, she said...
“Unfortunately, many people that I serve are used to being victimized and marginalized,” she said. “They’re used to having to deal with this on some low level regularly in their lives. That saddens me deeply, that this happened in my space. We intentionally try to make a space that’s welcoming, where this doesn’t happen.”
Dr. Lane said the only change she anticipates in the wake of the incident is the purchase of four more signs — to show that her work will go on.
“I think that awareness that these kind of things still go on is important for Pittsburgh, as a city and us as a community, to realize,” she said. “There are people still out there that hate for no good reason.
“Many people have felt marginalized at some point in their lives, probably including the people that write these type of messages. I would encourage all people to take a good look at themselves and their lives and their families. I would think that most of us would be hard-pressed to have a family that doesn’t have someone that doesn’t necessarily fit into the box that the rest of us fit into.
“We have to remember that we don’t have to like each other. We don’t have to agree with each other’s opinions. But we do have to treat each other with dignity and respect.”"