"Ethics in data management
Niklas Zimmer, manager of digital services at UCT Libraries, said that ethical management of data is key. Several of the lightning presentations made at the event underscored this.
UCT Gender Health and Justice Research Unit (GHJRU) research officer Kristen Daskilewicz cited an important example when she said the use of open data is not always appropriate for research where there are heightened safety concerns.
Her example described a collaborative two-year cross-sectional research project on LGBTI health, safety and other rights that the unit undertook on behalf of the Southern and Eastern Africa Research Collective on Health (SEARCH). SEARCH is a collective of 23 civil society organisations in nine countries.
The project participants had to be “very careful” with data collection and dissemination in the study countries, particularly those where aspects of same-sex relationships have been criminalised. There were concerns about protecting the survey participants and the unit’s civil society partners, who were the data collectors."
