How a South African community’s request for its genetic data raises questions about ethical and equitable research; The Conversation, April 19, 2022

Dana Al-Hindi, PhD Candidate in Anthropology, University of California, Davis, Brenna Henn
Associate Professor of Anthropology, University of California, Davis,   The Conversation;   How a South African community’s request for its genetic data raises questions about ethical and equitable research

"Scientists believe Africa is where modern humans first emerged. For the past decade, our team of genetic researchers from the Henn Lab have worked among the Khoe-San and self-identified “Coloured” communities in South Africa, which comprise multiple ethnic groups in the region, requesting DNA and generating genetic data to help unravel the history and prehistory of southern Africans and their relationship to populations around the world. 

While we have learned a great deal from these communities, we have been unable to fulfill a common request: providing them their individual genetic ancestry results. In our attempts to overcome the logistical challenges of providing this information, we’ve grappled with the common question of how to ensure an equitable balance of benefits between researchers and the community they study. What we’ve found is that there is no easy answer."