Wayne Carter, NBC5.com; Privacy Concerns Over DNA Tests That Help Discover Your Roots
"For [Larry] Guernsey his curiosity twisted to suspicion once he read the fine print. To proceed, he'd have to give ancestry a "perpetual, royalty-free worldwide transferable license" to use his DNA.
"That entire phrase: 'perpetual royalty-free worldwide transferable,' it sounds like they have left it open to do anything they want with it," Guernsey said.
He was concerned the "transferable license" could put his family's DNA in the hands of an insurance company that could later deny coverage.
"That's not a crazy worry," said Stanford University law professor Hank Greely.
Greely teaches and writes books about the intersection of bio-tech and the law."
The Ebook version of my Bloomsbury book "Ethics, Information, and Technology" will be published on December 11, 2025 and the Hardback and Paperback versions will be available on January 8, 2026. Preorders are available via Amazon and this Bloomsbury webpage: https://www.bloomsbury.com/us/ethics-information-and-technology-9781440856662/
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