Scientists Needn't Get A Patient's Consent To Study Blood Or DNA; NPR, 1/18/17

Rob Stein, NPR; 

Scientists Needn't Get A Patient's Consent To Study Blood Or DNA

"The Obama administration has dropped a controversial proposal that would have required all federally funded scientists to get permission from patients before using their cells, blood, tissue or DNA for research.

The proposal was eliminated from the final revision of the Common Rule, which was published in the Federal Register Wednesday. The rule is a complex set of regulations designed to make sure federally funded research on human subjects is conducted ethically. The revision to the regulations, set to go into effect in 2018, marks the first time the rule has been updated in 26 years.

The initial proposal that researchers be required to get permission before using a patient's tissue sample for research came out of the desire to avoid repeating what happened to Henrietta Lacks, an American who died of cervical cancer in 1951. Some of the cells from Lacks' cancer were kept alive for decades, used in research and for commercial purposes without her consent or her family's knowledge.

But scientists have argued that the mandate for consent in the initial Obama proposal was unnecessary and would hinder crucial research...

The final decision was welcomed by scientists and universities."

Tell Your University: Don't Sell Patents to Trolls; Electronic Frontier Foundation (EFF), 8/17/16

Elliot Harmon, Electronic Frontier Foundation (EFF); Tell Your University: Don't Sell Patents to Trolls:

"When universities invent, those inventions should benefit everyone. Unfortunately, they sometimes end up in the hands of patent trolls—companies that serve no purpose but to amass patents and demand money from others. When a university sells patents to trolls, it undermines the university’s purpose as a driver of innovation. Those patents become landmines that make innovation more difficult.

A few weeks ago, we wrote about the problem of universities selling or licensing patents to trolls. We said that the only way that universities will change their patenting and technology transfer policies is if students, professors, and other members of the university community start demanding it.

It’s time to start making those demands.

We’re launching Reclaim Invention, a new initiative to urge universities to rethink how they use patents. If you think that universities should keep their inventions away from the hands of patent trolls, then use our form to tell them.

EFF is proud to partner with Creative Commons, Engine, Fight for the Future, Knowledge Ecology International, and Public Knowledge on this initiative.

A Simple Promise to Defend Innovation

Central to our initiative is the Public Interest Patent Pledge (PIPP), a pledge we hope to see university leadership sign. The pledge says that before a university sells or licenses a patent, it will first check to make sure that the potential buyer or licensee doesn’t match the profile of a patent troll"

Pearls Before Swine; GoComics.com, 4/15/16

Stephan Pastis, GoComics.com; Pearls Before Swine

American Universities Are Failing at Ethics; Time, 7/17/15

James Keenan, Time; American Universities Are Failing at Ethics:

"In other forms of professional life, we have long recognized a strong connection between the lack of professional ethics in a particular institutional setting and the lack of an ethical consciousness in that culture.

I believe that the absence of professional ethics is evidence of and symptomatic of a culture disinterested in ethics. For instance, as we come out of the sexual abuse scandals that have ripped apart the churches, we see that the disinterest in professional ethical accountability of bishops and priests was sustained by the church’s clerical culture that was more attuned to advancement than it was to ethical responsibility and transparency.

A similar culture is part and parcel of the contemporary American university.

Simply put, the American university does not hold its employees to professional ethical standards because it has not created a culture of ethical consciousness and accountability at the university. This is in part because of the nature of the contemporary university and because it needs ethics.

The contemporary university functions not as an integrated, transparent community but as a medieval set of fiefdoms in which transparency and accountability are singularly to “the person upstairs”: that is, to the chair, the dean or a vice president. Faculty and administrators are not accountable to any colleague, but only to a higher administrator.

Moreover, this accountability is only one-directional. For all the compliance, accountability and collaborative models that university faculty teach in their ethics courses to physicians, nurses, managers and lawyers, the university itself remains averse to developing any true accountability structures."

Popular Yik Yak App Confers Anonymity and Delivers Abuse; New York Times, 3/8/15

Jonathan Mahler, New York Times; Popular Yik Yak App Confers Anonymity and Delivers Abuse:

"Eastern Michigan is one of a number of universities whose campus has been roiled by offensive “yaks.” Since the app’s introduction a little more than a year ago, it has been used to issue threats of mass violence on more than a dozen college campuses, including the University of North Carolina, Michigan State University and Penn State. Racist, homophobic and misogynist “yaks” have generated controversy at many more, among them Clemson, Emory, Colgate and the University of Texas. At Kenyon College, a “yakker” proposed a gang rape at the school’s women’s center...

“Yik Yak is the Wild West of anonymous social apps,” said Danielle Keats Citron, a law professor at University of Maryland and the author of “Hate Crimes in Cyberspace.” “It is being increasingly used by young people in a really intimidating and destructive way.”

Colleges are largely powerless to deal with the havoc Yik Yak is wreaking. The app’s privacy policy prevents schools from identifying users without a subpoena, court order or search warrant, or an emergency request from a law-enforcement official with a compelling claim of imminent harm. Schools can block access to Yik Yak on their Wi-Fi networks, but banning a popular social media network is controversial in its own right, arguably tantamount to curtailing freedom of speech. And as a practical matter, it doesn’t work anyway. Students can still use the app on their phones with their cell service."