Patricia Cohen, New York Times; Questioning Privacy Protections in Research:
"Hoping to protect privacy in an age when a fingernail clipping can reveal a person’s identity, federal officials are planning to overhaul the rules that regulate research involving human subjects. But critics outside the biomedical arena warn that the proposed revisions may unintentionally create a more serious problem: sealing off vast collections of publicly available information from inspection, including census data, market research, oral histories and labor statistics."
Ethically-tangled aspects of 21st century societies and cultures. In the vein of Charles Darwin’s 1859 “entangled bank” metaphor—a complex and evolving digital ecosystem of difference and dependence, where humans, technologies, ethics, law, policy, data, and information converge and diverge. Kip Currier, PhD, JD
Showing posts with label proposals to overhaul rules on human subjects research. Show all posts
Showing posts with label proposals to overhaul rules on human subjects research. Show all posts
Sunday, November 13, 2011
Questioning Privacy Protections in Research; New York Times, 10/23/11
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