Showing posts with label data collection and use. Show all posts
Showing posts with label data collection and use. Show all posts

Friday, November 3, 2023

The Internet Of Things Demystified: Connect, Collect, Analyze And Act; Forbes, October 12, 2023

 Bill Geary, Forbes; The Internet Of Things Demystified: Connect, Collect, Analyze And Act

"When you get past the acronyms and buzzwords that describe the platforms that help organizations manage their operations, it all boils down to gathering information so you can make good decisions. The tech industry establishes a lot of jargon that helps differentiate one technology from another. Those terms are helpful to IT professionals but often serve to confuse everyone else. The Internet of Things (IoT) is a term that creates confusion.

I prefer to describe this technology according to what it does. IoT is nothing more than connecting things, collecting information from them, analyzing it and acting upon it accordingly: connect, collect, analyze and act. By distilling the technology into a plain description, we demystify the term. We make it attainable and approachable—something that everyone can understand."

Thursday, October 26, 2023

How Americans View Data Privacy; Pew Research Center; Pew Research Center, October 18, 2023

COLLEEN MCCLAINMICHELLE FAVERIOMONICA ANDERSON AND EUGENIE PARK, Pew Research Center; How Americans View Data Privacy

"In an era where every click, tap or keystroke leaves a digital trail, Americans remain uneasy and uncertain about their personal data and feel they have little control over how it’s used.

This wariness is even ticking up in some areas like government data collection, according to a new Pew Research Center survey of U.S. adults conducted May 15-21, 2023.

Today, as in the past, most Americans are concerned about how companies and the government use their information. But there have been some changes in recent years:"

Friday, April 15, 2022

Tim Cook delivers speech railing against “data industrial complex,” sideloading; Ars Technica, April 12, 202


"Apple CEO Tim Cook took to the stage at the annual International Association of Privacy Professionals (IAPP) conference on Tuesday to talk about privacy, security, ad tracking, and sideloading.

Calling privacy "one of the most essential battles of our time," Cook lambasted companies that monetize large user-data collection operations, comparing them to real-world stalkers."

Monday, February 21, 2022

Their DNA Hides a Warning, but They Don’t Want to Know What It Says; The New York Times, January 21, 2022

, The New York Times ; Their DNA Hides a Warning, but They Don’t Want to Know What It Says

"Benjamin Berkman, a bioethicist at the National Institutes of Health, said that, in his view, the benefits of telling participants about genetic findings that can be treated or prevented greatly outweighed the risk that the participants might be frightened or fail to follow up.

“These are important pieces of information that can be lifesaving,” he said.

But not all biobanks give subjects the chance to receive health warnings.

At Vanderbilt, Dr. Clayton said, she volunteered genetic information to a biobank whose participants have been de-identified — all names and other personal information are stripped from the data. It also has other protections to prevent individuals in the bank from being found. While she happily contributed to the research, Dr. Clayton said, she is glad her data can’t be traced and that no one will call her if they find something that may be worrying.

“I don’t want to know,” she said."

Saturday, February 19, 2022

Opinion: After a rape survivor’s arrest, it’s time to rethink genetic databases; The Washington Post, February 17, 2022

Jennifer King, The Washington Post,; Opinion: After a rape survivor’s arrest, it’s time to rethink genetic databases

"Jennifer King is a privacy and data policy fellow at the Stanford Institute for Human-Centered Artificial Intelligence...

This episode offers a glimpse of the concerns over privacy — as well as matters such as consent to data collection — that will arise as genetic information is stored in ever-greater amounts, and as governments take an ever-greater interest in exploiting it."

Tuesday, February 15, 2022

Opinion: A lawsuit against Google points out a much bigger privacy problem; The Washington Post, February 14, 2022

Editorial Board, The Washington Post; Opinion: A lawsuit against Google points out a much bigger privacy problem

"The phenomenon the recent suits describe, after all, is not particular to Google but rather endemic to almost the entirety of the Web: Companies get to set all the rules, as long as they run those rules by consumers in convoluted terms of service that even those capable of decoding the legalistic language rarely bother to read. Other mechanisms for notice and consent, such as opt-outs and opt-ins, create similar problems. Control for the consumer is mostly an illusion. The federal privacy law the country has sorely needed for decades would replace this old regime with meaningful limitations on what data companies can collect and in what contexts, so that the burden would be on them not to violate the reasonable expectations of their users, rather than placing the burden on the users to spell out what information they will and will not allow the tech firms to have.

The question shouldn’t be whether companies gather unnecessary amounts of sensitive information about their users sneakily — it should be whether companies amass these troves at all. Until Congress ensures that’s true for the whole country, Americans will be clicking through policies and prompts that do little to protect them."

Friday, February 4, 2022

IRS plan to scan your face prompts anger in Congress, confusion among taxpayers; The Washington Post, January 27, 2022

Drew Harwell, The Washington Post; IRS plan to scan your face prompts anger in Congress, confusion among taxpayers

"The $86 million ID.me contract with the IRS also has alarmed researchers and privacy advocates who say they worry about how Americans’ facial images and personal data will be safeguarded in the years to come. There is no federal law regulating how the data can be used or shared. While the IRS couldn’t say what percentage of taxpayers use the agency’s website, internal data show it is one of the federal government’s most-viewed websites, with more than 1.9 billion visits last year."

Friday, December 31, 2021

Americans widely distrust Facebook, TikTok and Instagram with their data, poll finds; The Washington Post, December 22, 2021

 

, The Washington Post; Americans widely distrust Facebook, TikTok and Instagram with their data, poll finds

"According to the survey, 72 percent of Internet users trust Facebook “not much” or “not at all” to responsibly handle their personal information and data on their Internet activity. About 6 in 10 distrust TikTok and Instagram, while slight majorities distrust WhatsApp and YouTube. Google, Apple and Microsoft receive mixed marks for trust, while Amazon is slightly positive with 53 percent trusting the company at least “a good amount.” (Amazon founder Jeff Bezos owns The Washington Post.)

Only 10 percent say Facebook has a positive impact on society, while 56 percent say it has a negative impact and 33 percent say its impact is neither positive nor negative. Even among those who use Facebook daily, more than three times as many say the social network has a negative rather than a positive impact."

Tuesday, February 23, 2021

VA issues new data ethics principles; FedScoop, February 22, 2021

, FedScoop; VA issues new data ethics principles


"The Department of Veterans Affairs issued new ethics principles for accessing and handling veterans’ data, it announced Monday.

The nine principles are designed to ensure the safe and responsible use of data, especially personally identifiable information like medical data. With the increased use of data, particularly during COVID-19 response, comes thorny issues of how that data is used, protected and accessed, which the new principles aim to address.

In full, the principles developed by VA’s Data Ethics Group are:

  • The primary goal for use of Veteran data is for the good of Veterans.
  • Veteran data should be used in a manner that ensures equity to Veterans.
  • The sharing of Veteran data should be based on the Veteran’s meaningful choice.
  • Access to and exchange of Veteran data should be transparent and consistent.
  • De-identified Veteran data should not be reidentified without authorization.
  • There is an obligation of reciprocity for gains made using Veteran data.
  • All parties are obligated to ensure data security, quality and integrity of Veteran data.
  • Veterans should be able to access to their own information.
  • Veterans have the right to request amendments to their own information.

“VA’s principle-based ethics framework takes a proactive approach to data management and privacy by setting standards for our partners to follow,” acting VA Undersecretary for Health  Richard Stone said in a statement. “VA is applying this framework to all data interoperability initiatives, including those tied to our COVID-19 response and modernization efforts.”"

Saturday, June 13, 2020

With an Internet of Animals, Scientists Aim to Track and Save Wildlife; The New York Times, June 9, 2020

With an Internet of Animals, Scientists Aim to Track and Save Wildlife


Using tiny sensors and equipment aboard the space station, a project called ICARUS seeks to revolutionize animal tracking.

"The International Space Station, orbiting some 240 miles above the planet, is about to join the effort to monitor the world’s wildlife — and to revolutionize the science of animal tracking.

A large antenna and other equipment aboard the orbiting outpost, installed by spacewalking Russian astronauts in 2018, are being tested and will become fully operational this summer. The system will relay a much wider range of data than previous tracking technologies, logging not just an animal’s location but also its physiology and environment. This will assist scientists, conservationists and others whose work requires close monitoring of wildlife on the move, and provide much more detailed information on the health of the world’s ecosystems.

The new approach, known as ICARUS — short for International Cooperation for Animal Research Using Space — will also be able to track animals across far larger areas than other technologies. At the same time, ICARUS has shrunk the size of the transmitters that the animals wear and made them far cheaper to boot...

The science of wildlife tracking, known as bio-logging, has come a long way in recent years."

Wednesday, May 6, 2020

To Protect Black Americans from the Worst Impacts of COVID-19, Release Comprehensive Racial Data; Scientific American, April 24, 2020

 , Scientific American; To Protect Black Americans from the Worst Impacts of COVID-19, Release Comprehensive Racial Data

Properly reported information is crucial for black communities to recover from this crisis and transcend a history of exclusion

"History shows that when crises strike, Black Americans often experience the worst consequences. We mustn’t continue allowing this to happen. Our organizations—the National Birth Equity Collaborative and PolicyLink—recently joined a coalition called WeMustCount demanding the data. Once we have that data, we’re calling on policymakers to take immediate action to help.

The data on Black Americans and COVID-19 are shocking but not unexpected. Engrained racist structures prevent them from fully accessing health care, education, employment and more—all of which increases susceptibility to COVID-19 and its most devastating health consequences.

These issues trace back far before the current pandemic. It was baked into the nation’s founding and carries forward today. Black Americans have always suffered disproportionately from national crises...

Buried behind all of this is an underlying fear: Releasing the information would mean bringing attention to a problem that policy makers could otherwise easily ignore."

Wednesday, April 8, 2020

The Ethical Data Dilemma: Why Ethics Will Separate Data Privacy Leaders From Followers; Forbes, March 31, 2020

Stephen Ritter, Forbes; The Ethical Data Dilemma: Why Ethics Will Separate Data Privacy Leaders From Followers

"Companies themselves should proactively take a principled stand on how they will handle the personal data they collect. There’s a saying that if a product or service is free, then the users themselves are the product. It’s a disheartening view, but unfortunately one that’s been validated too many times in recent years.

Because the commoditization of consumer data isn’t likely to end anytime soon, it’s up to the businesses that gather and profit from this data to engage directly with their customers and establish data protections they will trust."

Sunday, April 5, 2020

Today’s COVID-19 Data Will be Tomorrow’s Tools of Oppression; The Daily Beast, April 2, 2020

Mona Sloane and Albert Fox Cahn, The Daily Beast; Today's COVID-19 Data Will be Tomorrow's Tools of Oppression

"For proof of the danger, one need only look at the aftermath of September 11th. When Congress enacted the USA PATRIOT Act, just a few weeks after the deadly attacks, the fear of terrorism blinded lawmakers to the threat of broad-based, suspicionless surveillance. Decades later, those same provisions, many of which were supposed to sunset in 2005, were still being renewed as recently as this week. If we pass hastily drafted measures to address the privacy impact of COVID-19 surveillance, there is no reason to think their impact would fade any sooner.

We need laws that protect citizens from the new privacy risks posed by COVID-19-induced data exploitation. This is even more crucial when we're including profit-motivated entities. Days ago, President Trump announced a larger private sector partnership as part of the White House’s COVID-19 response that included large-scale collaborations with Google, Walmart, CVS, Walgreens and others. New legal frameworks need to impose clear limits on how health data from the COVID-19 response can be exploited for other business lines."

Saturday, April 4, 2020

Using AI responsibly to fight the coronavirus pandemic; TechCrunch, April 2, 2020

Mark MinevichIrakli BeridzeTechCrunch; Using AI responsibly to fight the coronavirus pandemic

"Isolated cases or the new norm?
With the number of cases, deaths and countries on lockdown increasing at an alarming rate, we can assume that these will not be isolated examples of technological innovation in response to this global crisis. In the coming days, weeks and months of this outbreak, we will most likely see more and more AI use cases come to the fore.
While the application of AI can play an important role in seizing the reins in this crisis, and even safeguard officers and officials from infection, we must not forget that its use can raise very real and serious human rights concerns that can be damaging and undermine the trust placed in government by communities. Human rights, civil liberties and the fundamental principles of law may be exposed or damaged if we do not tread this path with great caution. There may be no turning back if Pandora’s box is opened."

Friday, February 21, 2020

Your DNA is a valuable asset, so why give it to ancestry websites for free?; The Guardian, February 16, 2020

; Your DNA is a valuable asset, so why give it to ancestry websites for free?

"The announcement by 23andMe, a company that sells home DNA testing kits, that it has sold the rights to a promising new anti-inflammatory drug to a Spanish pharmaceutical company is cause for celebration. The collected health data of 23andMe’s millions of customers have potentially produced a medical advance – the first of its kind. But a few weeks later the same company announced that it was laying off workers amid a shrinking market that its CEO put down to the public’s concerns about privacy.

These two developments are linked, because the most intimate data we can provide about ourselves – our genetic make-up – is already being harvested for ends we aren’t aware of and can’t always control. Some of them, such as better medicines, are desirable, but some of them should worry us...

These are the privacy concerns that may be behind layoffs, not only at 23andMe, but also at other DTC companies, and that we need to resolve urgently to avoid the pitfalls of genetic testingwhile [sic] realising its undoubted promise. In the meantime, we should all start reading the small print."

Saturday, February 8, 2020

Montana seeks balancing act with wildlife location data, hunting ethics; Independent Record, February 6, 2020

Montana seeks balancing act with wildlife location data, hunting ethics


"While GPS collars are invaluable to researchers and wildlife managers, the data they produce are the subject of debate about who should have access to the information and why. Some hunters have requested and received the exact latitude and longitude of collared animals, and that has conservation groups and lawmakers concerned about violating the edict of fair chase hunting or the potential to monetize the data."

Thursday, January 30, 2020

Happy “Data Privacy Day” – Now Read The New York Times Privacy Project About Total Surveillance; Forbes, January 28, 2020

Steve Andriole, Forbes; Happy “Data Privacy Day” – Now Read The New York Times Privacy Project About Total Surveillance

"It’s worth saying again:  every time we blog, tweet, post, rideshare, order from Amazon, rent an Airbnb – or anything that leaves a digital trail – we feed what Shoshana Zuboff calls “surveillance capitalism,” which is the monetization of data captured through monitoring people's movements and behaviors online and in the physical world, and which is summarized in the New York Times.  Countless digital systems now track where we are, where we go, what we eat, what we think, who we like, who we love, where we bank, what we know and who we hate – among lots of other things they know all too well because we remind them over and over again.  

Just in time for Data Privacy Day, the New York Times described just how pervasive surveillance really is. On Sunday, January 26, 2020, in a special section titled “One Nation, Tracked,” the Times presented some frightening stories...

Part of the ongoing “Privacy Project,” the Times analyzes every aspect of surveillance."


Facebook pays $550m settlement for breaking Illinois data protection law; The Guardian, January 30, 2020

Alex Hern, The Guardian; Facebook pays $550m settlement for breaking Illinois data protection law

"Facebook has settled a lawsuit over facial recognition technology, agreeing to pay $550m (£419m) over accusations it had broken an Illinois state law regulating the use of biometric details...

It is one of the largest payouts for a privacy breach in US history, a marker of the strength of Illinois’s nation-leading privacy laws. The New York Times, which first reported the settlement, noted that the sum “dwarfed” the $380m penalty the credit bureau Equifax agreed to pay over a much larger customer data breach in 2017."